1/5 Leesa B. 1 year ago on Google
A
doctor,
specializing
in
a
rare
disease,
means
nothing
at
John's
Hopkins!!
I
traveled
over
3
hours
to
go
to
a
specialist
for
a
rare
artery
disease
called
Fibromuscular
Dysplasia,
that
I
recently
found
out
that
I
have.
The
staff
were
very
friendly,
and
I
felt
that
I
was
going
to
a
place
where
I
would
be
in
good
hands.
The
day
of
my
appointment,
I
also
scheduled
to
get
new
scans
completed,
so
the
specialist
could
review
for
herself
and
give
me
a
care
treatment
plan,
and
so
I
could
better
understand
what
I
was
dealing
with.
That
day
went
well,
or
so
I
thought.
The
scans
were
read
very
quickly,
and
posted
in
my
chart
for
me
to
see.
This
is
where
I
saw
I
had
an
aneurysm
on
the
internal
carotid
artery,
near
the
opthalmic
artery,
a
nodular
appearance
on
the
other
side,
and
atherosclerosis.
The
doctor
wrote
me
a
message
later
that
day,
telling
me
that
my
scans
look
good.
I
asked
her
to
please
contact
me,
because
I
have
so
many
questions
now,
after
reading
my
results.
The
results
page
said
in
big
capital
letters,
CRITICAL
FINDINGS
WERE
REPORTED
TO
THE
DOCTOR
AND
MAY
BE
URGENT
IN
PATIENT
CARE.
Her
response
of
"Everything
looks
fine",
completely
confused
me.
I
questioned
her
response
and
said
that
I
would
feel
better
if
we
could
speak
on
the
phone,
or
schedule
a
televisit.
She
told
me
that
she
was
leaving
for
vacation,
so
no
call,
no
televisit.
Needless
to
say,
that
was
back
in
June,
and
it
is
now
August
7th,
and
have
yet
to
speak
to
her
regarding
my
results.
As
a
patient
who
traveled
over
3
hours
away,
so
I
could
be
assured
that
I
was
in
the
best
possible
hands,
I
was
completely
left
on
my
own
to
Google
search
every
word
that
was
on
my
report.
This
is
absolutely
100%
patient
neglect,
and
for
them
to
charge
me
what
they
did,
when
I
did
alot
of
research
myself,
is
not
right.
I
feel
that
I
wasted
an
entire
day,
and
now
have
severe
anxiety
every
day
over
NOT
KNOWING
anything
about
the
aneurysm
they
found.
It
is
a
small
aneurysm,
0.3cm,
but
that
doesn't
matter.
The
doctors
should
still
have
to
contact
their
patients
after
scans
are
done,
to
explain
in
detail,
and
answer
any
questions
we
may
have.
I
would
tell
anyone
who
may
be
thinking
that
traveling
to
John's
Hopkins
is
the
best
option
there
is,
that
you
may
want
to
dig
a
little
deeper
on
that
specific
doctor,
to
see
any
negative
reviews
they
might
have.
I
will
say
one
good
thing
at
this
moment,
the
only
good
thing
she
did
for
me,
was
ask
the
opinion
of
a
colleague
who
is
a
neurosurgeon,
to
review
my
scans,
and
I
now
have
to
travel
back
to
the
hospital
to
meet
with
him.
Hopefully
I'll
be
able
to
get
answers
from
him,
when
it
should
have
been
her
responsibility
to
call
me
to
go
over
my
reports
within
the
week
after
having
them
done.
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