5/5 Mary H. 4 months ago on Google
To
begin
my
child
was
born
at
another
hospital
in
Boston
where
they
treated
my
new
born
for
Jaundice
under
uv
lights..
the
babies
condition
did
not
improve
and
no
one
heard
my
concerns
when
I
said
my
baby
looked
extremely
yellow
and
wasn’t
acting
right.
It
wasn’t
until
the
babies
levels
reached
critical
levels
of
jaundice
that
the
drs
at
the
other
hospital
raised
concern
but
even
then
they
tried
to
assure
me
it
would
level
out
in
a
couple
days
and
be
fine…
nope
I
wasn’t
buying
it
any
more
and
I
rushed
my
baby
to
Boston
children’s.
I
was
sick
from
only
a
week
post
partum
myself
and
having
struggled
through
a
severely
high
risk
pregnancy,
had
major
surgery
during
pregnancy,
a
car
crash
at
the
end
of
my
pregnancy
,
&
more
than
you
can
imagine.
We
arrived
at
Boston
Children’s
Hospital
I
was
at
the
check
in
desk
they
started
asking
a
couple
questions
and
I
broke
down
into
tears..
numerous
nurses
and
staff
gathered
around
us
grabbed
my
newborn
and
in
the
matter
of
minutes
they
had
my
baby
in
a
room
in
the
er
under
uv
lights
to
start
treating
the
jaundice
and
running
vitals.
I
literally
was
a
mess
but
the
nurses
the
drs
truly
gave
me
comfort.
They
were
so
attentive
to
my
baby
and
me
they
were
concerned
for
us
both.
A
couple
hours
and
the
baby
was
admitted
to
the
7th
floor.
My
little
baby
went
through
various
blood
tests
every
day
and
stayed
under
uv
lights
to
lower
jaundice.
The
drs
had
come
to
me
with
a
diagnosis
within
a
couple
days
my
little
one
had
HDN
a
rare
blood
disease
that
causes
hyperbillrubin
(jaundice)
which
can
last
for
an
extended
period
of
time.
They
were
able
to
pin
point
what
the
other
hospital
brushed
off.
Jumping
forward
a
little
bit
the
baby
had
issues
with
failure
to
thrive
and
had
to
be
placed
on
a
feeding
tube
alongside
medications
and
had
been
in
the
hospital
pretty
much
since
birth
and
several
weeks
had
passed.
I
was
worried
about
my
baby
what
the
outcome
could
be.
I
honestly
started
to
become
worried
with
the
issues
and
the
things
I
read
about
the
disease
that
my
baby
might
not
make
it.
Even
though
they
told
me
everything
would
be
fine.
I
asked
for
a
Chaplin
and
the
nurse
was
so
pleased
to
help
me
and
have
them
come
see
me.
I
decided
to
have
ny
baby
baptized
in
the
hospital.
My
babies
nurse
I
believe
her
name
Was
Quinn
without
hestisation
agreed
to
be
the
witness
to
the
baptism.
That
moment
can’t
be
made
up
or
replaced…
Our
hospital
stay
continued,
my
baby
under
the
relentless
care
from
the
drs
and
nurses
improved…
we
were
discharged
and
came
home
(on
a
feeding
tube)
I
have
other
children
and
the
baby
unfortunately
had
to
be
readmitted
again
to
complicate
things
shortly
after
admission
my
oldest
kids
brought
the
flu
home.
I
wasn’t
able
to
visit
this
time
so
to
not
jeopardize
my
babies
health
more
than
it
always
was.
The
drs
called
me
with
updates
and
the
nurses
gave
me
updates
every
time
I
called
..
this
is
the
only
place
on
earth
I
could
trust
outside
of
my
family
leaving
my
baby
overnight
with
out
me.
They
gave
the
baby
so
much
love
and
attention
and
we’re
even
able
to
take
out
the
feeding
tube
and
do
all
oral
feeds.
My
baby
has
had
the
most
amazing
teams
from
the
time
we
walked
in
a
few
months
ago
to
today!!!!
I
truly
feel
Boston
Children’s
Hospital
saved
my
child’s
life.
I
could
not
be
more
thankful
for
the
amazing
drs
and
nurses
and
staff.
The
world
does
come
here
for
answers
and
they
answered
my
questions
and
have
gone
above
and
beyond.
Thank
you
for
all
you
all
do
thank
you
for
your
dedication
care
and
love.